Sunday, June 12, 2011

Myeloma Buddies and Friends Who Help us

Here are my companions when I blog. The myeloma buddy came from Paula, who writes Feresaknit Blog, who is a knitting and crocheting master. The Myeloma buddies she makes and sells to support the UK myeloma foundation.
Multiple Myeloma is a rare cancer (unfortunately the numbers are increasing) with about 1% of the population suffering from this incurable cancer.
My motto, Where there is life there is hope.
I have had Freddy the frog for years, I purchased him as a gift but could not part with him, he watches over me.
Our dogs have gone to dog heaven so I have to have different mascots to spur me on.
My trial this week has been with having check ups and figuring out how to heal my broken radius. It was originally a hairline fracture but now has become more broken. The no longer put the radius or ulna in a cast so you have to wear a sling and try not to use your arm.
For me the downside has been radiation. As I had a bad multiple myeloma lesion at the fracture site, the 20 radiations did not help the arm to heal. As it was healing better, I used it more, now I am back to the sling. Yes I type with it but that is about all.
The doctors have been trying to see what can be done. The hand surgeon can put a plate in but the consequences can be dire. Highly likely that I can develop paralysis of the hand, as they do not see the nerves that work the fingers (it is because the break could not be in a worse place.)
Sooo we nixed that idea, have doubled the calcium and magnesium and Vit D in hopes it will improve it. A smart friend suggested hyperbaric oxygen . I check with my 3 doctors and they thought it was a brilliant plan.
Maybe brilliant, now I am fighting uneducated people, who say that the insurance company may not pay for it. If I had a weeping sore would be different, but one of the criteria is to have had radiation that worsened the problem. I am anxiously awaiting my radiologist to call and tell me it can be done. He is 110% for it so now it is up to politics. "They" say it has never been done we need to study it..Hmmm wonder what I am..So that is my saga this week.
I am doing well but it does tire you out. I had 5 elements acupuncture this week, to lessen my chest infection. 2 antibiotics and I am not ready to try anymore so up the Vitamin B and Cod liver Oil.
My website www.healingcancernaturally.net has been updated so do not forget to refresh your browser when visiting. I am still adding new content but had to get the previous content organized.
Have a great week and remember to meditate.!:)

1 comment:

  1. I'm glad to see your Buddy has good company - apart from you of course! ;D

    ReplyDelete